Early in the COVID-19 crisis, pediatric hospitalsfaced staffing shortages and programming cuts due to the global pandemic andwere struggling to find engaging and meaningful activities for young patients. CCA staff knew that JoyRx Music was uniquely positioned to meet that critical need, and, together with families and hospital partners, we created a new branch of music medicine programming. We now call this Digital-Live, which complements our On-Demand music offerings, available to kids and families 24/7 at JoyRxMusic.org.

David is an active, bright 13-year-old with a passion for science. Even from a very young age, he always wanted to know the answers to everything. And so when he was diagnosed with osteosarcoma in February of 2021, the first thing he did was ask the doctor a question: “What are the chances that I’m going to die from this?”

Macky is a bubbly 12-year-old who loves animals (especially monkeys!) and studying math. In late 2017, his mom, Sarah, noticed that her normally stocky son was losing weight — a lot of weight.

“Mom, it feels like there’s a chainsaw running through my leg.”

When 12-year-old Izzy spoke those words in the fall of 2020, her mom Erika realized that her daughter’s recent discomfort was far more then growing pains. A scan at the doctor’s office revealed a fracture running through the middle of the left side of Izzy’s pelvis, but it also revealed something worse: a fuzzy mass that turned out Ewing’s sarcoma, a type of cancer that forms in the bones and soft tissues of the body.

When Bertha first found out her son, Emet, had leukemia, she was speechless. She didn’t know how to break the news to Emet, who was only 10 years old at the time, without scaring him. But then, she found the perfect words.

Madelynn is a sweet, friendly five-year-old who loves arts and crafts, Legos, and playing outside. But in summer 2019, Madelynn’s parents, Bridgette and Alex, noticed a worrying change. Madelynn no longer had the energy to do her favorite activities, and her parents had to carry her everywhere—she wouldn’t even walk into a store with her mom to pick out a toy. 

Imagine being nine years old and having more medical diagnoses than you can count. Spending months of your life in a hospital bed, instead of playing outside. My son, Xay, has been in and out of the hospital since the day he was born. He has epilepsy, chronic lung disease, spastic hemiplegic cerebral palsy, ADHD, an autoimmune disorder…but despite everything, Xay always finds a reason to smile. 

In December 2019, just before the holidays, Wesley was diagnosed with Acute Myeloid Leukemia (AML), a type of blood cancer.  

Meet Kira, a bright and musical 15-year-old who has recently completed three years of treatment for Acute Lymphoblastic Leukemia (ALL).  

Tucked among other islands of Micronesia, Kosrae is a remote speck in the middle of the Pacific. Eight-year-old David Kihleng and his family called this tiny island paradise home — at least, they did until they learned that David had T-cell leukemia in 2018.

When Janalyn’s son, Spencer, was diagnosed with neuroblastoma just before his 13th birthday, she saw firsthand how powerful and healing Joy can be. During his first prolonged hospital stay, Spencer shut down. He refused every comfort, interaction, and activity offered—until CCA’s trained MyMusicRx^® musicians, Cameron and Jean, walked through the door.

Seriously ill children, teens, and their families remain isolated in quarantine, cut off from the support of extended family, friends, and the world around them. CCA is committed to continuing service delivery for this vulnerable population, who are deeply impacted by this pandemic. 

The pandemic has left many of us experiencing heightened feelings of anxiety, stress, uncertainty, and isolation — feelings incredibly familiar to Lance and Chloe, whose son, Bo, was diagnosed with acute myeloid leukemia (AML) when he was just nine months old.

We are thrilled to team up with Gibson, the world’s most iconic guitar brand, to bring the healing power of music to the seriously ill kids and teens served by MyMusicRx^®. 

CCA is committed to continuing service delivery for seriously ill children and their families and supporting the doctors, nurses, and medical staff who care for them, all who are even more deeply impacted during this pandemic. With social distance strategies in place, our team is innovating the ways we deliver Joy remotely. 

The phoenix is a mythological bird that rises from the ashes, symbolizing the ability to overcome darkness and rise to any challenge. It’s a fitting name for our January Hero, 12-year-old Phoenix, who has risen above his circumstances with incredible strength and courage.

Kailanie has been through more yucky stuff than most kids her age — 19 surgeries in her first three years of life. But no matter what, she makes the best of everything.

 Those are just some of the burning questions that CCA-served kids got to ask their favorite music stars in a brand-new video series that recently premiered on December 2. The series, called “MyMusicRx-clusives” was part of CCA’s #GivingTuesday campaign to raise awareness for MyMusicRx and funds for the Children’s Cancer Association.

For the past eight years, David’s had a friend in his corner to help him through long days in the hospital — his Chemo Pal mentor, Jana. She was matched with David right before his first surgery and has been by his side ever since.

At just three years old, our October Hero Uriah is wise beyond his years and a joy to everyone who meets him. He loves tractors, listening to animal sounds, and exploring the great outdoors with his family.