Vancouver 4-year-old honored by Children’s Cancer Association

Lyla Hopper-Lopez, 4, was named a Children’s Cancer Association 2018 CCA Hero, which is a group of 11 local children and teens recognized for their exceptional courage, wisdom and grace in the face of serious medical challenges. The heroes were honored on May 29 at the Oregon Museum of Science and Industry during a private recognition event, which featured a dove release, and was hosted by Drew Carney of KGW-TV and Regina Ellis, founder and chief joy officer at the association.

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In One Ear: ‘The power of positivity’

Ten-month-old Cyrus “Squishy” Churches of Astoria, who was diagnosed with acute myeloid leukemia shortly after he was born, has been named one of the Children’s Cancer Association (CCA)’s Heroes for 2018.  CCA Heroes are selected annually by medical teams at Randall Children’s Hospital at Legacy Emanuel, Doernbecher Children’s Hospital, Shriners Hospital for Children and CCA staff.  Cyrus’ chemotherapy treatments required monthlong hospital stays, with only a week off in between. Visits from the MyMusicRx team cheered him up, though, during his ordeal. “That was his favorite!” said his mom, Toniann. “At first, he would just stare or chase after them, but soon he was wanting to play along.” He also enjoyed jam sessions with his guitar-playing dad, Chad, and lullabies.

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Local musicians bring joy to young patients

St. David’s Children’s Hospital is helping patients heal with the power of music. The north Austin hospital partnered with MyMusicRx, to bring local Austin musicians to the hospital and play for children.  The volunteers are all specially trained to learn music medicine techniques, depending on a child’s mood and needs. “Our specialists play music, the often will even teach lessons,” said Abby Guyer, vice president of brand for Children’s Cancer Association, “and the notion is that kids get to be in charge of the interaction. so we like to say its kid-prescribed rather than doctor-prescribed.”

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Forest Grove Boy a CCA Hero

A Forest Grove boy is being recognized for his bravery in battling something no kid should ever have to: cancer. Weston Epler was diagnosed with acute lymphoblastic leukemia last year at age 4. This year, he has been named one of the Children’s Cancer Association Heroes for his fight to end the disease. Weston is one of 11 children and teens recognized by the association for their “exceptional courage, wisdom and grace in the face of serious medical challenges,” said Children’s Cancer Association spokeswoman Whitney Wilhardt. The children were publicly celebrated at OMSI on Tuesday, May 29, with a medal award ceremony and dove release.

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Harefest Adds Cancer Fundraiser

Harefest in Canby has added a fourth day, open to attendees of all-ages, that will benefit the Children’s Cancer Association. Harefest for all will be Sunday, July 15 at Pat’s Acres in Canby and will feature regionally renowned Journey, Def Leppard, Bon Jovi, Pearl Jam, Heart, and The Cars tribute bands.

This new event includes the most popular features of the Harefest event, including the photo stage (a smaller version of the main stage specifically for photo ops with and without the festival performers, big hair station where ticket holders can get a professional ’80s hair-styling, northwest food and drink vendors, and kids’ activities such as face painting, henna tattoos, balloon artist, and even a ferris wheel. An added feature that is not available at Harefest is go-kart racing as Pat’s Acres Racing Complex will be open to the public during the event.

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Children’s Cancer Association’s Annual Fundraiser Hearts of Joy Raises $435,000

Portland, OR. February at Children’s Cancer Association (CCA) is always a special time when supporters come together for CCA’s largest community-driven campaign, Hearts of Joy. This fundraiser raises critical revenue for CCA’s programs that leverage music, friendship, nature, and resources to create transformative moments of joy for 28,000 children, teens, and their family members facing cancer and other serious illnesses each year. With the help corporate partners, hospitals, board members and volunteers, this year’s events raised $435,000. Since its inception in 2005, Hearts of Joy has raised more than $5.7 million for CCA’s programs.

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SXSW puts on music show for kids at Dell Children’s Hospital

Music from SXSW made a stop at Dell Children’s Hospital on Thursday! It’s the sixth year for MyMusicRX to partner with Dell Children’s for the music event where musicians play in the courtyard at the hospital for any patient who wants to listen.

“MyMusicRX brings joy to children that are in the hospital and not able to experience the things that other kids are able to enjoy,” said Sarah Marshall with the MyMusicRX Austin Champions Board, “It’s just a break from the medications, a break from the treatments, just a time to laugh and have fun.”

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CCA + Legacy: Collaborative study looks to decrease pain and anxiety in children with live music post-surgery

“Most of the published work on the effects of music in patients involves adults,” said R. Serene Perkins, MD, Director of Surgical and Clinical Research, Legacy Research Institute. “Assessing and managing pain and anxiety in children is more difficult, which is what led us to explore the impact of music medicine in a pilot group of hospitalized children. We believe there is a critical gap in pediatric oncology research: understanding the role of integrative therapies to combat the adverse effects of stress on pediatric patients.”

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