Kailanie has been through more yucky stuff than most kids her age—19 surgeries in her first three years of life. But no matter what, she makes the best of everything. Preferred to be called by her nickname, Unicorn Superhero Warrior Princess, this unstoppable little girl has lateral meningocele syndrome (LMS), a rare disorder that affects… Read more »
For the past eight years, David’s had a friend in his corner to help him through long days in the hospital—his Chemo Pal mentor, Jana. She was matched with David right before his first surgery and has been by his side ever since.
At just three years old, our October Hero Uriah is wise beyond his years and a joy to everyone who meets him. He loves tractors, listening to animal sounds, and exploring the great outdoors with his family. Uriah’s deep love for nature makes it tough for him to receive treatment for neuroblastoma, which requires long days at the “sick hotel,” aka the hospital.
Shakey Graves, Austin, Texas based musician and proponent of the healing power of music commissioned a custom-beaded Epiphone guitar celebrating his concert at Red Rocks Amphitheatre in Morrison, Colorado. We are so excited to share that it is up for auction to benefit MyMusicRx. Bid to take home this beautiful guitar at JoyRx.org/ShakeyGraves
Another year in Austin came and went much too fast! This year featured room-to-room performances at St. Davids, an amazing concert at Dell Children’s, and the successful recording of 20 #SXSW artists – soon to be featured on MyMusicRx.org!
If you had asked me two years ago to describe my family, I would have said we were the typical Washington family… But in the summer of 2017, our four-year-old daughter, Lyla, was diagnosed with a Wilms tumor.
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