Forest Grove Boy a CCA Hero

A Forest Grove boy is being recognized for his bravery in battling something no kid should ever have to: cancer. Weston Epler was diagnosed with acute lymphoblastic leukemia last year at age 4. This year, he has been named one of the Children’s Cancer Association Heroes for his fight to end the disease. Weston is one of 11 children and teens recognized by the association for their “exceptional courage, wisdom and grace in the face of serious medical challenges,” said Children’s Cancer Association spokeswoman Whitney Wilhardt. The children were publicly celebrated at OMSI on Tuesday, May 29, with a medal award ceremony and dove release.

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Harefest Adds Cancer Fundraiser

Harefest in Canby has added a fourth day, open to attendees of all-ages, that will benefit the Children’s Cancer Association. Harefest for all will be Sunday, July 15 at Pat’s Acres in Canby and will feature regionally renowned Journey, Def Leppard, Bon Jovi, Pearl Jam, Heart, and The Cars tribute bands.

This new event includes the most popular features of the Harefest event, including the photo stage (a smaller version of the main stage specifically for photo ops with and without the festival performers, big hair station where ticket holders can get a professional ’80s hair-styling, northwest food and drink vendors, and kids’ activities such as face painting, henna tattoos, balloon artist, and even a ferris wheel. An added feature that is not available at Harefest is go-kart racing as Pat’s Acres Racing Complex will be open to the public during the event.

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Children’s Cancer Association’s Annual Fundraiser Hearts of Joy Raises $435,000

Portland, OR. February at Children’s Cancer Association (CCA) is always a special time when supporters come together for CCA’s largest community-driven campaign, Hearts of Joy. This fundraiser raises critical revenue for CCA’s programs that leverage music, friendship, nature, and resources to create transformative moments of joy for 28,000 children, teens, and their family members facing cancer and other serious illnesses each year. With the help corporate partners, hospitals, board members and volunteers, this year’s events raised $435,000. Since its inception in 2005, Hearts of Joy has raised more than $5.7 million for CCA’s programs.

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SXSW puts on music show for kids at Dell Children’s Hospital

Music from SXSW made a stop at Dell Children’s Hospital on Thursday! It’s the sixth year for MyMusicRX to partner with Dell Children’s for the music event where musicians play in the courtyard at the hospital for any patient who wants to listen.

“MyMusicRX brings joy to children that are in the hospital and not able to experience the things that other kids are able to enjoy,” said Sarah Marshall with the MyMusicRX Austin Champions Board, “It’s just a break from the medications, a break from the treatments, just a time to laugh and have fun.”

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CCA + Legacy: Collaborative study looks to decrease pain and anxiety in children with live music post-surgery

“Most of the published work on the effects of music in patients involves adults,” said R. Serene Perkins, MD, Director of Surgical and Clinical Research, Legacy Research Institute. “Assessing and managing pain and anxiety in children is more difficult, which is what led us to explore the impact of music medicine in a pilot group of hospitalized children. We believe there is a critical gap in pediatric oncology research: understanding the role of integrative therapies to combat the adverse effects of stress on pediatric patients.”

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Children’s Cancer Association Clinical Trial Explores Efficacy of Music Medicine on Kids in Hospital

In a first of its kind collaboration, the Portland, OR-based Children’s Cancer Association (CCA)Randall Children’s Hospital at Legacy Emanuel (RCH)and Legacy Research Institute (LRI) co-led a study to assess the impact of using live music medicine on post-surgery pediatric patients to reduce pain and anxiety. The study was led by R. Serene Perkins, M.D. and Shaban Demirel, PhD in partnership with CCA professional staff and focused on CCA’s flagship program, MyMusicRx. As part of the study, thirty-two pediatric patients aged between 5 and 18 years were considered to receive one live, customized music session by a MyMusicRx music specialist within 12 hours after surgery.

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GlobalGiving’s Impact Data: Highlighting Nonprofit Learning and Effectiveness

On #GivingTuesday, November 28, Charity Navigator released the first wave of impact statements for thousands of rated nonprofits. GlobalGiving contributed our impact information to charity profiles, offering additional insights into our nonprofit partners’ cultures and philosophy around learning and effectiveness. We hope to help donors make more informed and impactful giving choices. Each of our partner organizations earns Effectiveness Points for Listening, Acting, Learning and Repeating, and points translate into a GG Rewards ranking: Partner, Leader, or Superstar. The Children’s Cancer Association ranked in the top ten for Superstar organizations.

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Watch Portugal. The Man Sing in Bed

That’s right, it’s the return of Bedstock, the annual festival for kids and teens with cancer organized by MyMusicRX, where artists perform from bed to show solidarity for children who have to spend the festive season in theirs.  Since its inception in 2014, Bedstock has featured more than 240 bands and artists, 54 kids, 45 authors (they read stories from bed), and raised more than $170,000 for the Children’s Cancer Association. The #BedstockChallenge, which encourages fans and social media users to post their own Bedstock videos, has seen entries from all over the globe, including from India, Argentina, Germany, and Japan. Check out Portugal. The Man’s under-the-covers cover of “Don’t Look Back in Anger” in the video.

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